Help Charlie Heal

 

Charlie is a bright and shiny human. I’m lucky to be his Mama. Approximately 12 hours after he was born, Charlie began having seizures. An MRI revealed he had suffered two strokes affecting the right side of his brain. The strokes occurred in utero. Charlie's stroke may or may not be due to another condition he has called Craniosynostosis. This is when two skull plates fuse prematurely in the womb. It is going to take years to fully comprehend what the stroke will mean for Charlie's motor skills, cognitive and language development. Only time will tell how his brain will recover from the trauma. In the meantime, Charlie has the love of his family and us - a strong network friends to help him grow and heal.

Many of the posts below were originally published at the Help Charlie Heal Fund, an archive of updates for folks who have supported our family financially as we manage Charlie’s emerging health and medical needs. If you’re interested in making a contribution to Charlie’s medical care fund, you can do that here: www.paypal.com/paypalme/HelpCharlieHeal

 

Charlie is Entering Unknown Territory

New State, New Healthcare

Charlie is Walking!

Charlie’s Upsee

Botox & Braces

Charlie’s New Ride!

Talking the Talk

Routine EEG

Pre-School for Charlie

Video of First Steps

Updates & Evals

Charlie’s New Wheel Chair

Roll, Charlie, Roll

Feeding Therapy

What Does Charlie Do During His Therapy Sessions?

The S.T.E.P.S. Program

Orthotics & Leg Casting

Epilepsy

Love & Aquatherapy

What Does Cerebral Palsy Mean for Charlie?

Starting Sign Language

MRI: Understanding the Extent of Charlie’s Brain Damage

Early Childhood Intervention

Two Months Post-Op

Charlie’s Second Face

Five Days Post-Op & More About Charlie’s Dental Frenulum

Charlie’s First Birthday

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Home From Surgery!

Charlie is Out of ICU

Preparing for Craniofacial Surgery

What Will Happen During Charlie’s Craniofacial Surgery?

Hematology Update

Our Community Responds

What is Craniosynostosis?

The Genetics Report

The Urology Report

The Neurology Report

The Cardiology Report

Home from the NICU

Charlie’s Birth Story